Introduction
Discussions about homelessness often happen without the meaningful inclusion of those who have directly experienced it. Policymakers, researchers, service providers, and journalists frequently speak about homelessness without speaking with people who have lived through it. This exclusion not only perpetuates inaccurate narratives but also leads to less effective solutions.
This article explores the importance of centering the voices and perspectives of people with lived experience of homelessness in discussions, reporting, and policy development. It examines why lived experience expertise matters, the barriers to meaningful inclusion, and practical approaches for amplifying these essential voices.
Why Lived Experience Expertise Matters
The perspectives of people who have experienced homelessness provide unique and essential insights:
Firsthand Knowledge of Systems and Barriers
People with lived experience have navigated complex systems from the inside:
- Direct knowledge of how services actually function (versus how they're designed to work)
- Experience with the practical barriers that may not be visible to service providers
- Understanding of the unintended consequences of well-intentioned policies
- Awareness of gaps between different parts of the system
- Insights into informal support networks and survival strategies
Expertise on What Works
Lived experience provides crucial feedback on interventions:
- Firsthand knowledge of which approaches are helpful and which create additional barriers
- Understanding of how program requirements affect engagement and outcomes
- Insights into the actual (versus intended) impact of services
- Awareness of what's missing from current approaches
- Practical suggestions for improvement based on direct experience
Challenging Assumptions and Stereotypes
Lived experience voices counter misconceptions:
- Providing counternarratives to common stereotypes
- Highlighting the diversity of experiences within homelessness
- Challenging oversimplified explanations of causes and solutions
- Demonstrating agency, resilience, and capability
- Humanizing discussions that often become abstract or technical
Ethical Imperative for Inclusion
Beyond practical benefits, inclusion is a matter of justice:
- Respecting the principle of "Nothing About Us Without Us"
- Recognizing the right of people to participate in decisions affecting their lives
- Addressing power imbalances in how homelessness is discussed and addressed
- Acknowledging that lived experience is a form of expertise that deserves recognition
- Countering the historical marginalization of people experiencing homelessness
Key Insight
Lived experience expertise is not just about personal stories or testimonials. It represents a distinct form of knowledge that complements—and sometimes challenges—professional and academic expertise. When people with lived experience are meaningfully included in discussions about homelessness, they bring analytical insights, system knowledge, and practical wisdom that cannot be gained through external observation alone.
Barriers to Meaningful Inclusion
Despite its importance, lived experience expertise faces significant barriers to inclusion:
Stigma and Credibility Bias
Prejudice undermines recognition of expertise:
- Assumptions that homelessness indicates poor judgment or decision-making
- Credibility hierarchies that privilege professional and academic knowledge
- Stigma that leads to dismissal of lived experience perspectives
- Tokenization that treats lived experience as merely anecdotal
- Expectations that people must be "success stories" to have valuable insights
Practical and Logistical Barriers
Structural obstacles limit participation:
- Meetings scheduled during working hours or in inaccessible locations
- Lack of compensation for time and expertise
- Transportation challenges and costs
- Digital divide limiting access to online participation
- Childcare needs and other caregiving responsibilities
Process and Format Barriers
How discussions are structured can exclude:
- Jargon-heavy language that creates unnecessary barriers
- Academic or bureaucratic formats that privilege certain communication styles
- Lack of preparation or context for meaningful participation
- Intimidating environments that discourage open communication
- Insufficient time for relationship-building and trust development
Exploitation and Tokenization
Superficial inclusion can cause harm:
- "Poverty porn" that uses stories for emotional impact without meaningful influence
- Token inclusion without decision-making power
- Expectations to repeatedly share traumatic experiences
- Using participation to legitimize predetermined decisions
- Failure to acknowledge contributions or implement feedback
"We're often invited to share our stories but rarely invited to shape the solutions. Real inclusion means having a seat at the table when decisions are made, not just being asked to validate what others have already decided."
Models of Meaningful Inclusion
Several approaches demonstrate effective inclusion of lived experience expertise:
Peer Support and Outreach
Employing people with lived experience in service delivery:
- Peer support specialists who provide unique connection and understanding
- Outreach teams that include people who have experienced homelessness
- Peer navigation programs that help others access services
- Recovery support roles that build on shared experience
- Training and professional development pathways for peer workers
Advisory Boards and Governance
Formal inclusion in decision-making structures:
- Lived experience advisory boards with meaningful influence
- Reserved board positions for people with lived experience
- Participatory governance models with shared power
- Consumer councils that provide ongoing feedback
- Youth action boards specifically for young people with lived experience
Participatory Research and Evaluation
Collaborative knowledge creation:
- Community-based participatory research with shared ownership
- Peer researchers involved in study design, data collection, and analysis
- Participatory evaluation that centers program participants' perspectives
- Photovoice and other creative methodologies that center lived experience
- Co-authorship of publications and presentations
Advocacy and Organizing
Collective action led by people with lived experience:
- Grassroots organizations founded and led by people who have experienced homelessness
- Speakers' bureaus that provide education and advocacy
- Policy advocacy campaigns centered on lived experience perspectives
- Coalition-building that maintains lived experience leadership
- Media advocacy that challenges stereotypes and promotes accurate representation
Success Story
The National Coalition for the Homeless' Faces of Homelessness Speakers' Bureau has trained over 500 people who have experienced homelessness to share their stories and insights with the public. Beyond storytelling, speakers analyze policy, challenge stereotypes, and advocate for structural change. The program provides honoraria for speaking engagements, recognizing that lived experience expertise deserves compensation like any other form of expertise.
Principles for Ethical Engagement
Meaningful inclusion requires attention to several key principles:
Compensation and Value Recognition
Acknowledging expertise through tangible means:
- Fair payment for time, expertise, and contributions
- Compensation rates comparable to other consultants or experts
- Multiple payment options that accommodate different situations
- Covering associated costs like transportation and childcare
- Recognition of contributions in publications, presentations, and materials
Power Sharing and Decision-Making
Moving beyond consultation to influence:
- Clear roles with actual decision-making authority
- Transparency about how input will be used
- Accountability for implementing recommendations
- Shared ownership of processes and outcomes
- Attention to power dynamics in all interactions
Trauma-Informed Approaches
Creating safe and supportive engagement:
- Recognition that sharing experiences may trigger trauma responses
- Options for participation that don't require disclosure of personal trauma
- Support resources available during and after participation
- Attention to environmental factors that affect psychological safety
- Respect for boundaries around what people choose to share
Accessibility and Accommodation
Removing barriers to participation:
- Multiple formats and methods for engagement
- Plain language communication that avoids unnecessary jargon
- Flexible scheduling that accommodates work and other responsibilities
- Physical accessibility of meeting locations
- Technology support for digital participation
Relationship and Trust Building
Investing in long-term engagement:
- Ongoing relationships rather than one-time consultation
- Time for trust development before expecting vulnerability
- Follow-through on commitments and promises
- Transparency about limitations and constraints
- Acknowledgment of historical harms and power imbalances
"Meaningful inclusion isn't just about having us at the table—it's about setting the table differently. It means changing how meetings are run, how decisions are made, and how expertise is recognized. It means being willing to share power, not just space."
Practical Applications Across Sectors
How different sectors can meaningfully include lived experience expertise:
For Service Providers and Nonprofits
Organizations working directly with people experiencing homelessness:
- Hire people with lived experience at all levels, including leadership
- Establish consumer advisory boards with meaningful influence
- Create career pathways for peer support specialists and other roles
- Implement regular feedback mechanisms for program participants
- Include lived experience perspectives in program design and evaluation
- Provide training and support for staff with lived experience
- Review policies and procedures with input from people who have experienced homelessness
For Policymakers and Government
Public sector approaches to inclusion:
- Establish lived experience advisory councils for homelessness initiatives
- Include people with lived experience on formal boards and commissions
- Create paid consultant positions for lived experience expertise
- Implement participatory budgeting for homelessness funding
- Require lived experience inclusion in funded programs
- Develop accessible public comment and engagement processes
- Support leadership development for advocates with lived experience
For Researchers and Academia
Approaches to collaborative knowledge creation:
- Partner with people who have experienced homelessness in study design
- Train and hire peer researchers for data collection and analysis
- Establish community review boards for research proposals
- Share findings with communities before publication
- Co-author with researchers who have lived experience
- Compensate fairly for all research participation
- Create academic positions and pathways for scholars with lived experience
For Media and Journalism
Ethical approaches to storytelling and reporting:
- Develop relationships with organizations led by people with lived experience
- Quote people experiencing homelessness as experts, not just subjects
- Compensate for interviews and contributions
- Provide meaningful consent processes for storytelling
- Allow people to review how their stories are presented
- Hire journalists who have experienced homelessness
- Include analysis and commentary from people with lived experience
Innovative Approach
The Denver Homeless Leadership Council consists of 16 members, all of whom have experienced homelessness. The Council advises the city on policy, reviews funding proposals, and provides ongoing feedback on programs. Members receive stipends, transportation assistance, and meals for their participation. The Council has influenced several major policy decisions, including the design of a new shelter system and the implementation of the city's coordinated entry process.
Addressing Common Challenges
Strategies for overcoming obstacles to meaningful inclusion:
Representation and Diversity
Ensuring broad inclusion within lived experience:
- Recognize the diversity of homelessness experiences (families, youth, veterans, etc.)
- Actively recruit participants from underrepresented groups
- Consider intersectional identities and experiences
- Avoid having a single "representative" speak for all lived experience
- Create multiple pathways for participation to include different perspectives
Balancing Current and Past Experience
Including both current and retrospective perspectives:
- Value both current experiences and the perspective that comes with distance
- Create safe opportunities for people currently experiencing homelessness to participate
- Recognize that recent experience provides crucial insights on current conditions
- Acknowledge that those with past experience may have more capacity for certain roles
- Build bridges between those currently experiencing homelessness and those who have in the past
Avoiding Exploitation and Burnout
Protecting well-being while amplifying voices:
- Be mindful of how often people are asked to share traumatic experiences
- Create opportunities that focus on analysis and solutions, not just personal stories
- Provide emotional support resources when discussing difficult topics
- Respect boundaries around what people choose to share
- Be aware of signs of fatigue or burnout and adjust accordingly
Institutional Resistance
Addressing organizational barriers to inclusion:
- Start with small, concrete steps to demonstrate value
- Document and share positive outcomes from inclusion
- Identify and address specific concerns or objections
- Connect inclusion to organizational values and mission
- Build a coalition of supporters across the organization
Beyond Storytelling: Deeper Forms of Inclusion
Moving from personal narratives to systemic influence:
From Stories to Analysis
Recognizing analytical expertise:
- Creating space for people with lived experience to analyze systems and policies
- Inviting critique and recommendations, not just personal testimony
- Supporting development of analytical skills and policy knowledge
- Recognizing that lived experience provides unique analytical insights
- Moving beyond "success stories" to systemic understanding
From Consultation to Co-Creation
Sharing ownership of processes and outcomes:
- Involving people with lived experience from the beginning of initiatives
- Sharing decision-making power throughout the process
- Co-designing programs, policies, and research
- Creating collaborative leadership structures
- Ensuring shared credit and recognition for outcomes
From Individual to Collective Voice
Supporting organized advocacy:
- Recognizing and supporting organizations led by people with lived experience
- Providing resources for collective organizing and advocacy
- Creating space for group representation, not just individual voices
- Supporting leadership development and capacity building
- Respecting the autonomy of lived experience-led organizations
From Participation to Leadership
Creating pathways to decision-making roles:
- Developing leadership pipelines for people with lived experience
- Creating mentorship and professional development opportunities
- Addressing barriers to leadership positions
- Challenging assumptions about who can be a leader
- Supporting lived experience leaders in navigating institutional contexts
The Future of Lived Experience Inclusion
Emerging trends and innovations in amplifying voices:
Digital Storytelling and Media
New platforms for self-representation:
- Podcasts, blogs, and social media created by people with lived experience
- Digital storytelling projects that give creators control over their narratives
- Collaborative documentary and film projects
- Virtual reality experiences designed with lived experience input
- Online communities that connect people with shared experiences
Participatory Action and Design
Collaborative approaches to change:
- Co-design methodologies for services and physical spaces
- Participatory action research led by affected communities
- Human-centered design processes with lived experience at the center
- Community-based monitoring and accountability systems
- Collaborative evaluation frameworks
Lived Experience Certification and Training
Formalizing expertise recognition:
- Certification programs for peer support specialists
- Training programs in advocacy, public speaking, and policy analysis
- Academic pathways that value lived experience alongside formal education
- Professional development opportunities specifically for people with lived experience
- Recognition of lived experience as a qualification in hiring processes
Cross-System Collaboration
Breaking down silos through lived experience:
- Lived experience councils that address multiple systems (housing, healthcare, justice)
- Cross-sector initiatives led by people with lived experience
- Collaborative advocacy across traditionally separate issue areas
- Recognition of how lived experiences span multiple systems
- Unified approaches to addressing interconnected challenges
Conclusion
Amplifying the voices of people with lived experience of homelessness is not just a matter of inclusion or representation—it's essential for developing effective, dignified responses to housing instability. The expertise that comes from direct experience provides insights that cannot be gained through external observation or professional training alone.
Meaningful inclusion goes beyond inviting people to share their stories. It requires recognizing lived experience as a form of expertise, sharing power in decision-making processes, providing fair compensation, and creating accessible opportunities for participation. It means moving from tokenistic consultation to genuine co-creation and leadership.
The barriers to meaningful inclusion are significant, from practical obstacles like transportation and scheduling to deeper challenges like stigma and power imbalances. However, numerous organizations and initiatives have demonstrated that these barriers can be overcome through intentional, principled approaches.
By centering the voices and perspectives of people who have experienced homelessness, we can develop more accurate understandings of the issue, create more effective solutions, challenge harmful stereotypes, and uphold the fundamental principle that people have the right to participate in decisions that affect their lives. In doing so, we not only improve our responses to homelessness but also create a more just and inclusive society.
References & Further Reading
- National Coalition for the Homeless. "Faces of Homelessness Speakers' Bureau." National Coalition for the Homeless, 2023. https://nationalhomeless.org/references/faces-of-homelessness/
- Groundswell. "Participatory Action Research and Homelessness." Groundswell, 2023. https://groundswell.org.uk/
- Thistle, Jesse. From the Ashes: My Story of Being Métis, Homeless, and Finding My Way. Simon & Schuster, 2019. https://www.simonandschuster.com/books/From-the-Ashes/Jesse-Thistle/9781982101213
- National Health Care for the Homeless Council. "Consumer Advisory Board Toolkit." NHCHC, 2022. https://nhchc.org/clinical-practice/consumer-advisory-boards/
- U.S. Interagency Council on Homelessness. "Engaging People with Lived Experience." USICH, 2023. https://www.usich.gov/tools-for-action/engaging-people-with-lived-experience
- Liegghio, Maria, and Izumi Chuang. "Peer Support for People with Lived Experience of Homelessness: A Scoping Review." Journal of Social Distress and Homelessness, vol. 31, no. 2, 2022, pp. 171-183. https://doi.org/10.1080/10530789.2021.1935650
- Denver's Road Home. "Denver Homeless Leadership Council." City and County of Denver, 2023. https://www.denvergov.org/Government/Agencies-Departments-Offices/Agencies-Departments-Offices-Directory/Department-of-Housing-Stability
- Wang, Caroline, and Mary Ann Burris. "Photovoice: Concept, Methodology, and Use for Participatory Needs Assessment." Health Education & Behavior, vol. 24, no. 3, 1997, pp. 369-387. https://doi.org/10.1177/109019819702400309